Betwixt brollying gas-driven clouds shimmying out sunlights’ dazzles, bedraggling rain now falls temporary.
I made this post as a response to the 13wordstory posted by Sir Tonix at BW.
I made this post as a response to the 13wordstory posted by Sir Tonix at BW.
Oh dear, i hope a poem attesting to ‘…while no king – no patriarchy – …’ doesn’t appear anti-establishment/anti-royal-family! It’s so deeply concerning, the prejudices we all encounter online moreso these days than ever. Words (and opinions) are not meant to be concrete, they are virtual and shape-shifting…
I’d just copied my original poem from my word-processing screen to post online when an external copier appears to have attempted to snatch a copy too, the selection froze highlighting that section of the last few lines. I posted my poem at my other (main) blog. I call it my main blog because it’s my blog using my proper name. But i blog all over the place here at wordpress (in and on my own account).
I would have been meeting the challenge in better time for MLA, but…
… well, that’s the way of the world isn’t it. Apols that not capitalising my ‘i’ to ‘I’ is annoying for some readers. I’m just plain lazy. In that respect – not entirely no – we were cultured to remember our unimportance in the grand scheme of things here in little england. Nothingham city, to be precise.
So, I can’t remember what on earth was i going to fill this post out with for this month.
Maybe i’ll just leave it here, and think ‘that’ll do’ nicely 🙂
I finally got to see and appreciate on you tube the trailer for a film-documentary ‘everyone’s raving about …’ thanks to this tweet to somewhere to find a springboard link from:
I do want to see the ‘Unrest’ film but it’s inaccessible to most people with Myalgic Encephalomyelitis and raises plenty of concerns regarding the nightmare that is ‘chronic fatigue strategy’ and the ways the problems of disabling illness for people with M.E. have been whitewashed by the CFS campaign and the funding intended for a specific defined patient population has been usurped and misappropriated.
Ironically, ‘Unrest’ is also the title of a 2006 horror film. Now why could i see that for free on youtube but not the american documentary of a lady with an (assuming) undiagnosed neurological stroke type condition, with or without encephalopathy by what little i’ve seen, heard, or read about the reality of the disabling effects and impacts of her ‘chronic fatigue syndrome’ that appears anything but M.E., although probably/possible similar in many ways. And it’s not nice when you know you have a diagnosis proven by verifiable clinical scientific practise (i.e., M.E.) that other people with M.E. might think or say ‘no you don’t’ or ‘I can’t see how…’ and that ‘scientifically-proven’ is misrepresented as scientifically impossible even after research findings based on your blood have been classified by the british government! But possibly that lady’s neuro-condition whether M.E.type illness (in which case she wouldn’t have a chronic fatigue syndrome diagnosis if she were living in my country), but her condition might be treatable with potential stabilising nutrients such as coQ10 or other medicinal products. It’s one way the CFS developments are dangerous for all people with disabling health conditions all around the world! A ready-made way to deny treatment protocols via what appears to be credible evidence based practise founded in what appears to be deliberate corruption and bias!
I wonder how many British people knew that footage of them might be included in a screening of this nature when they shared time in online video discussions and maybe that’s why the full length documentary isn’t accessible to the British/world M.E. community – and we’re assumed to be a priveleged lot of elitist white people with nothing much wrong with us in comparison to other folk in the world with what are perceived to be far more ‘serious and severe’ disease processes. I know I did not take part. But I would like to be able to access the entire presentation even though CFS is not M.E. – a lot of people are duped into thinking it is, because of misinformation.
It’s interesting to realise that yes, the FedEx talk everyone was raving about is staged and phoney in the presentation of an actress, maybe a relative of the documentary subject/creator acting as an assistant – it’s not the same person’s experience and that lady having a ‘stand-in’ present her talk explains that incongruity issue of it being so difficult to believe when i was watching and listening a little enough – i read the whole of the transcript and it doesn’t read as anything similar to Myalgic Encephalomyelitis barely at all – but the ‘chronic fatigue’ type experience of a distinct diagnosable but undiagnosed neurological condition meeting the ‘CFS’ descriptors enough that had little about it that might truly reflect the collective realities of M.E. patients who continue to experience further harm and neglect as a result of this nightmare CFS situation. The neglect we experienced before was less harmful and less impacting than since this thing started that the world seems to believe is helping us.
So now bio-medical research funding increases will continue to research anything other than Myalgic Encephalomyelitis because CFS funded services EXCLUDES anyone with confirmed, clinically proven M.E. and anyone with any other lifelong disability BECAUSE the CFS strategy is KNOWN to be potentially dangerous for such patient categories!
And gawd, i would much rather be doing anything else than looking like i’ve nothing better to spend my time and limited energy thinking about than ‘oh, poor ME!’
oops, apols if it reads as some Angry Bird sucking too much seedy-fruitcake 🙂 I do hope I’ve no caused offence. Best wishes all! Thank goodness Friday13th is over with…
…and there’s much to look forward to these next few weeks. I’ll be another whole year older by the end of the month – and glad that doesn’t happen every month. Whether I’ll be any the wiser for my older age remains to be seen, but I’d hedge my bets toward ‘most unlikely’.
As usual there’s ongoing blogging goals. I can’t be bothered to think about them much just now, kind of mapped out already and more of the same ole same ole and lots of lingering to-do’s. I don’t know how long this ‘blogging my way back to life somehow’ might take, but I’ll get there, wherever ‘there’ might be. Maybe I just need more determination (to get a life, not to blog! LOL). This month I’m still looking to get my blogging house in order and retaking the BloggingU customisation and everyday-inspiration ‘courses’, but not from here and hopefully not in my usual scatterbrained here, there and everywhere ways…
I’ll be carrying on my appreciation of Cid Corman and delving into getting to know Frank O’Hara’s poetry better. Hopefully I’ll be immersing with reading and experiencing poetry aplenty, learning some more about more poets and maybe even trying to write some more poems myself too. Maybe it’ll help me drag myself into being more creative in other ways too, like getting a daily drawing routine going – it’s been a failing goal for much too long. I definitely could use some better therapeutic activity time and a lot more often.
Somewhere to hand I’ve some packets of flower seeds that should still be good for sowing. Increasing exposure to natural daylight and more outdoor fresh air would be a very good idea. Fairweather gardening might be do-able in small bursts, providing winter doesn’t strike with avengeance. Even if it does, there should be some window for gardening type enjoyment and the fencing really needs patching and propping up more sufficiently.
Although I’ve not yet made it onto the bouncerciser at all yet, nor my wii-fit, and even though excercise can be counterproductive they are at least available if ever I feel up to some. I live in hope. I used to love walking, just getting anywhere at all under your own steam, but my capacity and tolerance has been reducing year on year for the last eight years. It’s quite concerning to now, or still, be at this current stage and on the one hand seems totally unrealistic to be even thinking about excercise and on the other hand seems totally defeatist not to be. I’m managing up and down the stairs a bit better again – and quite often in comparison to a while ago. So, being grateful for small mercies…
I’ve been managing to eat more regularly without cooking much as such and have restarted co-enzymeQ10 supplements. They’re no good without good food enough and food’s not much good with insufficient enzyme production. So keeping up with food and nutrition and making sure to enjoy food is definitely on the menu again. Washing up may be off the cards most days of the week but I’m making sure not to make much of it by labour-saving strategies and by letting it wait around looking like still life. I even got photos to prove it but I’m not sharing those here and now. I might draw from them when I’ve washed up forgetting to get round to drawing any beforehand.
Anything else besides will be an added and appreciated bonus and be bound to get a mention – I almost forgot to add that I’ve managed quite a lot of reading books for pleasure these last few weeks. That makes a nice change. I’m quite enjoying reading Scott Nicholson’s post-apocalyptic ‘After’ series, they’re quite an easy read and very more-ish; I already finished the four books of his that I bought and so need to buy more – or find a better way of getting kindle books and ending my boycott, cos kindle versions are loads cheaper as well as having the environmental advantage and the instant delivery. Yet a real book will still work for very much longer than any gadget and there’s nothing quite like turning a page.
I haven’t forgotten my family, honestly, even if it’s not what it looks like; we’re quite long overdue for a visit but will get around to it eventually, one of these days…
It seems like only a few days ago I was making January’s MLA post but I managed to achieve some of things in that post (in spite of my lately stresshead phase).
I write this post to join in with the event created by Coolbeans. I enjoy visiting there, even though I don’t share a similar zeal for watching movies or TV, it’s an uplifting blog to read. I liked the idea of using this event for my blogging strategy mostly, to make a monthly plan and set myself some goals. I can’t really plan for any other kind of activity much at all. Keeping up with anything consistently is quite difficult, but the laptop helps keep me awake, so, here we are again, only a day late this time. Hooray!
I’m using Coolbeans’ original event emblem pic this month (and hoping they don’t mind!) – this is for the purple reminding of remembrance.
February is a significant month for me relating to the loss of both my parents.My Dad died over 20years ago and my Mum’s death was just last year.
o does a todo list work in any blog theme or just P2? apparently it doesn’t work here!
I’m late again! “Better late than never!” tends to be my recurring mantra, for quite some time now… I could add to my usual excuse of ongoing ill health to those frustrating tech difficulties that I’ve wasted so much time on lately! I could have set up my new toy, but want to be awake and concentrating well when I do! I set this thing up in a fuzzy haze and it hasn’t helped – but then Windows10 is less clear than 98/XP were for administrative and security settings and seems to want to auto-control things. Probably just me not really sussing it better yet.
My blogs are in quite a shoddy mess, and need some #blogging101 refreshing! Underway, whenever…
I managed a little blog reading and interaction recently from my now aging mobile phone – but isn’t technology made so quickly obsolete these days! I’m very much regretting not Continue reading “2017 and the Monthly Look Ahead!”
There are so many good threads of potential to kick-start ideas and begin writing from Pam’s latest post at Blogger’s World.
“Perhaps all the things we choose to keep are metaphors for us”
Pam writes a creative writing post for Blogger’s World at least once a month, sometimes more often and they’re well worth revisiting -as are the other contributor posts for this feature. Often I get lost in thought and reflection and never quite get around to following through! I can be such a daydreamer! So this time I made a small start on paper and with a note to self to resolve that here and now. [I know I’ve a lot of stuff I’m behind with getting back to, but very good at distracting with another something else!]
A light-weight look at Johann Wolfgang von Goethe for my #authorstory post at the b101alumni today 🙂
Yesterday was #readabookday on Twitter. As I’m still waiting for delivery of a recently purchased book – and with a love of Project Gutenberg (and other free online reading archives) I headed to their Facebook page to find I am belated in marking Goethe’s birthday anniversary (Goethe, born 28th August, 1749, died 22nd March, 1831, aged 82 years). The following autobiography by Goethe, was a fantastic find -originally translated from German and published in English in 1897 and only recently added to Project Gutenberg.
(For some reason, facebook posts, although showing in post-draft, not showing in published post, you can also find it at this link: https://www.facebook.com/project.gutenberg/photos/a.387615124635933.91011.165355083528606/1186862491377855/?type3 )
I could probably spend hours over months reading about Goethe before being able to pay justice to his #authorstory. Although his is a name I’m familiar with, in the context of his work being of influence to other literary and artistic…
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