#13wordstory for prompt ‘Cold Autumn’

Betwixt brollying gas-driven clouds shimmying out sunlights’ dazzles, bedraggling rain now falls temporary.

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#skywatch 17:12[BST] or 16:12GMT/cUt yesterday evening Friday 3rd Nov, 2017

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earlier this morning, stepping out into light cool rainfall for fresh air check

I made this post as a response to the 13wordstory posted by Sir Tonix at BW.

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monthly look ahead – MLA October 2017 – late again innit

screenshot of my poem, link to post in text

Oh dear, i hope a poem attesting to ‘…while no king – no patriarchy – …’ doesn’t appear anti-establishment/anti-royal-family! It’s so deeply concerning, the prejudices we all encounter online moreso these days than ever. Words (and opinions) are not meant to be concrete, they are virtual and shape-shifting…

I’d just copied my original poem from my word-processing screen to post online when an external copier appears to have attempted to snatch a copy too, the selection froze highlighting that section of the last few lines. I posted my poem at my other (main) blog. I call it my main blog because it’s my blog using my proper name. But i blog all over the place here at wordpress (in and on my own account).

I would have been meeting the challenge in better time for MLA, but…

… well, that’s the way of the world isn’t it. Apols that not capitalising my ‘i’ to ‘I’ is annoying for some readers. I’m just plain lazy. In that respect – not entirely no – we were cultured to remember our unimportance in the grand scheme of things here in little england. Nothingham city, to be precise.

So, I can’t remember what on earth was i going to fill this post out with for this month.

Maybe i’ll just leave it here, and think ‘that’ll do’ nicely 🙂

I finally got to see and appreciate on you tube the trailer for a film-documentary ‘everyone’s raving about …’ thanks to this tweet to somewhere to find a springboard link from:

I do want to see the ‘Unrest’ film but it’s inaccessible to most people with Myalgic Encephalomyelitis and raises plenty of concerns regarding the nightmare that is ‘chronic fatigue strategy’ and the ways the problems of disabling illness for people with M.E. have been whitewashed by the CFS campaign and the funding intended for a specific defined patient population has been usurped and misappropriated.

Ironically, ‘Unrest’ is also the title of a 2006 horror film. Now why could i see that for free on youtube but not the american documentary of a lady with an (assuming) undiagnosed neurological stroke type condition, with or without encephalopathy by what little i’ve seen, heard, or read about the reality of the disabling effects and impacts of her ‘chronic fatigue syndrome’ that appears anything but M.E., although probably/possible similar in many ways. And it’s not nice when you know you have a diagnosis proven by verifiable clinical scientific practise (i.e., M.E.) that other people with M.E. might think or say ‘no you don’t’ or ‘I can’t see how…’ and that ‘scientifically-proven’ is misrepresented as scientifically impossible even after research findings based on your blood have been classified by the british government! But possibly that lady’s neuro-condition whether M.E.type illness (in which case she wouldn’t have a chronic fatigue syndrome diagnosis if she were living in my country), but her condition might be treatable with potential stabilising nutrients such as coQ10 or other medicinal products. It’s one way the CFS developments are dangerous for all people with disabling health conditions all around the world! A ready-made way to deny treatment protocols via what appears to be credible evidence based practise founded in what appears to be deliberate corruption and bias! 

I wonder how many British people knew that footage of them might be included in a screening of this nature when they shared time in online video discussions and maybe that’s why the full length documentary isn’t accessible to the British/world M.E. community – and we’re assumed to be a priveleged lot of elitist white people with nothing much wrong with us in comparison to other folk in the world with what are perceived to be far more ‘serious and severe’ disease processes. I know I did not take part. But I would like to be able to access the entire presentation even though CFS is not M.E. – a lot of people are duped into thinking it is, because of misinformation.

It’s interesting to realise that yes, the FedEx talk everyone was raving about is staged and phoney in the presentation of an actress, maybe a relative of the documentary subject/creator acting as an assistant – it’s not the same person’s experience and that lady having a ‘stand-in’ present her talk explains that incongruity issue of it being so difficult to believe when i was watching and listening a little enough – i read the whole of the transcript and it doesn’t read as anything similar to Myalgic Encephalomyelitis barely at all – but the ‘chronic fatigue’ type experience of a distinct diagnosable but undiagnosed neurological condition meeting the ‘CFS’ descriptors enough that had little about it that might truly reflect the collective realities of M.E. patients who continue to experience further harm and neglect as a result of this nightmare CFS situation. The neglect we experienced before was less harmful and less impacting than since this thing started that the world seems to believe is helping us.

So now bio-medical research funding increases will continue to research anything other than Myalgic Encephalomyelitis because CFS funded services EXCLUDES anyone with confirmed, clinically proven M.E. and anyone with any other lifelong disability BECAUSE the CFS strategy is KNOWN to be potentially dangerous for such patient categories!

And gawd, i would much rather be doing anything else than looking like i’ve nothing better to spend my time and limited energy thinking about than ‘oh, poor ME!’

oops, apols if it reads as some Angry Bird sucking too much seedy-fruitcake 🙂 I do hope I’ve no caused offence. Best wishes all! Thank goodness Friday13th is over with…

February 2017’s Monthly Look Ahead

It seems like only a few days ago I was making January’s MLA post but I managed to achieve some of things in that post (in spite of my lately stresshead phase).

I write this post to join in with the event created by Coolbeans. I enjoy visiting there, even though I don’t share a similar zeal for watching movies or TV, it’s an uplifting blog to read. I liked the idea of using this event for my blogging strategy mostly, to make a monthly plan and set myself some goals. I can’t really plan for any other kind of activity much at all. Keeping up with anything consistently is quite difficult, but the laptop helps keep me awake, so, here we are again, only a day late this time. Hooray!

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I’m using Coolbeans’ original event emblem pic this month (and hoping they don’t mind!) – this is for the purple reminding of remembrance.

February is a significant month for me relating to the loss of both my parents.My Dad died over 20years ago and my Mum’s death was just last year.

 

26 days of February to go… nowhere as fast as ever, on the slow

o does a todo list work in any blog theme or just P2? apparently it doesn’t work here!

  1. Blogging101 / writing101 refresh, SloPo and whatever other learning practises I can manage, trying to regain some increase to cognitive activity levels, while physically exhausted and too soon in pain to manage anything much when up on my feet. I must try not to wear myself out so much whenever, whatever.
  2. Still temp volunteering a little at Blogger’s World (front-end only posting-level access only, no admin responsibilities there); an authorstory to write for 9th, having had a break from posting for it and very grateful to others for taking up the call for posts. I messed up my attempt at helping for a creative writing post, but I’m not practised enough in formal writing, for one thing. Sincere apologies to Pam and others for failing that commitment! Shakespeare401 to work toward for May.
  3. Still needing to visit blogging neighbours more, but reading fatigue not helped by stress of impossible wifi access issues on and off for whatever reasons. I waste too much time unable to escape the stress impacts of the silliest little things! I can’t just ‘go do something less boring instead’ to recall that jingle line of an old fave UK kid’s program, called “Why Don’t You…?”
  4. With contagious cycles of current new onset illness (contracted while out shopping on August 27th 2016) and this negatively impacting my M.E. and other health issues, it’s unlikely I’ll be getting anywhere out and about much at all this month.But I can do very small excercise along the garden path or in the street sometimes (contagion is only a mucoid / close contact risk, potentially, apparently). Funny how the general population have no regard for preventing spread of their own contagions, generally, while some of us have to confine ourselves as if lepers! Maybe because people believe so much absurd NHS misinformation and can’t be bothered to uncover the facts that lay beyond two clicks deep. Socially transmitted diseases mislabelled as STD is also very annoying, so is denying healthcare to M.E. patients so as ‘not to pander to the idea of being physically ill’!
  5. Anyway, I’ve steamed ahead with getting it together better at SwishingUp. It’s been on the P2 theme for ages, but in blog style rather than using it in message-board format. Unfortunately, trying to return the ‘Edit’ label to the posts and pages by ticking an option for ‘front-end editing’ has ruined it and there’s no way to return to my previous chosen style using that theme. I managed some extra customisation there and have more admin practise ‘work’ to do there yet. I might have to look for a new theme similar to how I had it there before or just remove and reapply the theme. Doh! Still don’t know how margins got removed and other stuff messed up there…
  6. I’m still blogging all over the place now and then! Sorry if it’s confusing to have different ‘rooms’ – is it easier to think of them as just a row of scatty notebooks on a wordpress shelf? I know I’m not the only one practising content in different themes. I’ve got to get back to speed at Snailzpace Daily too while Stu’s away so much! Next to music, blogging’s good ‘medicine’, it seems.
  7. I’m still trying to gear up to doing something creative every day, like managing a small daily sketch – but the day often runs itself out without even cooking a proper meal or doing basic things. No good forcing myself off my blog(s), it doesn’t help to fail to achieve anything! I’ve even failed keeping my handscrawled ‘daybook’ again after a fairly good start for a few small days last month. I did this, I did that, gets a bit depressing! I would like to keep a journal but never have yet and if I can’t keep up with entering my daily detail in a simple diary, then, well… I just need to keep myself going somehow better.
  8. Hopefully this month I’ll continue what I intended to post for the DP ‘transcript’ prompt, although that could keep going a while too, here and there; then there’s ‘The memory of things’ that really caught my fancy as an inspiring topic.
  9. Nutritional improvements are quite a necessity as is,
  10. spring cleaning and domestic reorganisation(!) one square yard or cubic foot at a time!

 

 

 

2017 and the Monthly Look Ahead!

 

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click to visit Coolbeans MonthlyLookAhead post

I’m late again! “Better late than never!” tends to be my recurring mantra, for quite some time now… I could add to my usual excuse of ongoing ill health to those frustrating tech difficulties that I’ve wasted so much time on lately! I could have set up my new toy, but want to be awake and concentrating well when I do! I set this thing up in a fuzzy haze and it hasn’t helped – but then Windows10 is less clear than 98/XP were for administrative and security settings and seems to want to auto-control things. Probably just me not really sussing it better yet.

Getting back to more blogging interaction!

My blogs are in quite a shoddy mess, and need some #blogging101 refreshing! Underway, whenever…

I managed a little blog reading and interaction recently from my now aging mobile phone – but isn’t technology made so quickly obsolete these days! I’m very much regretting not Continue reading “2017 and the Monthly Look Ahead!”

Only seven days later …

Hey Happy Twelfth Night! Just to prove the UK is nothing like a ‘christian country’ kids had to go back to school two days ago! So maybe we’ll get to celebrate the winter festival whenever it next snows!

(Main point of post: If you have anything to suggest to improve the BW forum, please visit the latest sticky post from another committed and respected member at http://blogging101alumni.wordpress.com )

I’m relegated to my phone for now as my laptop/wifi/human-operative-inputter is playing up again! Otherwise I might have shared a slightly icy/frosty new #snaphappy photo -especially as it’s usually #shutterbug showcasing at BW (blogging101alumni…)

I drafted an  authorstory post at my main blog but lost it to a pdf print back up thankfully before the ether ate it. Maybe a bit soon to publish it the way I wrote it but I assume the gentleman wouldn’t have minded. Relatives can be a pain in the troublesomes once they own creative rights though, but perhaps not in John Berger’s instance. Hopefully. Maybe I’ll just share that pdf with an improved draft, if my laptop and wifi will just be more agreeable. I’ll get far enough for a cable soon as … whenever.

Doh! Nevermind… maybe I can get things working better later and add a little snap to it! Maybe. P’raps when all the neighbours within a souped-up-router range get their fairy lights down or something so that my outdated box-that-won’t-handle-the-imposed-soupup-speed-and-still-ripping-me-off-some-more-VM! . Tho’ prob it’s just me messing up somehow and failing again. I usually tend to get the blame. Whatever!

So… I came here to post something… oh yeah, a reminder to self to post to this latest breaking BW post in case any occasional reader mught have something to share there in response or even otherwise. Go say Happy New Year or anything anyway you like and test your author member access if you’ve not dropped in over there for a while. Or shout up as a visiting reader – after all, not all #blogging101 ‘alumni’ wish to be author level members. Especually not with some previously dodgy and oppressive admin volunteer working hard to enact some kind of new vision for the forum while sabotaging the original purpose to enable that outcome. And in our welcoming global virtual community TWICE they were witnessed online engaging in a hate campaign/casre discrimination. They altered their comments so that other group members sided with the culprit and the targets were excluded. Myself and another blogging non-member acquaintance have screenshots enough to prove it. But the system has that info too. So it should’ve been better sorted ages ago.

Said volunteer was super quick to offer me the door to get the hell outa there too! Not a chance! Sign on said door says #blogging101 – and of course that doesn’t exclude the other workshopping members of things like #blogging201 or #writing101 and even poetry or the wordpress community generally.

Gripe over for today. Hopefully.

That’s just how it seems. And while it appears they’re clinging to their position and potentially able to interfere with participation via comnent and pingback linking (maybe, or maybe not) it’d be nice if others might drop by and test the forum capability. Our on-call admin is busy with other projects but hanging in by a thread to try and be available. Obviously reluctant to mess anything up after everyone’s hard work – so outdated info still makes us all look a bit like shoddy no-hoperz. But they did a great job in both the first team effort and in the second team effort of generating a content and event/challenge plan. So there’s a lot of development foundation that could be built on if some very basic issues could be resolved. Dunno even how many or who still or might have current admin or editor level access. Maybe someone in the know will reveal all soon enough. Assuming the original site owner remains as such too, as passing on a site with a quite large member number is potentially non-viable without member consensus(?)

One thought on admin I’d had was that if there were at least a team of eight volunteers, with a rota for one day a week each (and clear volunteer policy/roles & responsibilities) one a day could just check in and reply to posts or comments and the ‘spare’ could just maybe be ‘overseer’ during that week. And maybe our original tech-volunteer might be willing to return to manage forum structure or whatever. But maybe that’s too complicated. That or something similar enough is the only way I’d be able to offer volunteer time. And no way I’d wanna try anything to do with sidebars or widgets etc! No one volunteer should be left so overstretched as has occurred in the past, in an ideal world. But we can all be socially responsible enough to take a moderator role in discussions and excessive control and fear of interactions in an Askinet protected environment is a bit absurd.

I do have my own group project to pick up on sometime but that’s a completely different kettle of fish eg. for curatorial and collaborative creativity, with a local focus and wider reach – and very slow and deliberately so just now.

So, running on again!

Again. If you have anything to suggest to improve the BW forum, please visit the latest sticky post from another committed and respected member at Blogging101alumni.wordpress.com – and you can always have your say here too. Comments should appear immediately unless Aksimet adds them to my spam queue.

Thanks for reading and have a happy day/night and happy whole new year too!

 

Monthly Look Ahead – leap into March!

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Thank you to IamDonovan at Coolbeans4

first, for the MLA challenge and new badge announced on LeapDay! yay!

and for remembering & taking part in the Leapster challenge 🙂

  • I can’t believe how far I had to go the long way round to find my previous LMA post in my blog! I need my blog to have plenty of easy access navigation points… looking forward to doing more of my blog admin in March and somehow getting a system going…

 

  • I’m also looking forward to making my ‘2020 vision’ …(Leapster) and mini challenge posts (but running late!)

 

  • Very late in the month it’s (you might know I’d be late in the month for my own) birthday… I should be looking forward to it but…

 

  • Leap Day feel’s like a New Year – or the start of another four year cycle – which of course it is. By the 29th of March, not only will I have celebrated my birthday and be drafting next month’s MLA post, but I’m making every 29th of every month a leapster day, somehow… sort of… y’know….? Of course that excludes next February when the theoretical day falls somewhere between 28th Feb. and 1st March…

 

  • Seeing if we can grow a #blogdare and / or #writingdare network going for sharing and responding to off-the-cuff informal challenges. that could be fun….

 

I’m sure I should be looking ahead more… there’s Easter of course – and I can always come back and up date this post later… is that what they mean by ‘dynamic content’?

The WishingWell (bloghome)

Leapster Challenges (joining in?)

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Happy Leap Day!

If I’d had better energy and not distracted with theme changing I might have got this Leap thing off the ground better, made an event page and submitted a listing. But, right from the beginning the Leapster was a free-flying flit about just making a leap sometime, somehow… ‘Your leap, your way…’

“Leap and the net will appear.” John Burroughs

“One way we can enliven the imagination is to push it toward the illogical… We don’t always have to make the logical, reasonable leap.” Stella Adler

Source: Brainyquote.com

My Leap, my way.. coming soon:

  • a Leap proposal…
  • my 2020 vision (not a plan, just a glimpse ahead…)
  • round-up post of leaps along the way (thanks SarahC et al for joining the fun 🙂
  • ‘make-a-leap’ mini-challenges so far so…

It’s never too late to join in, 2020 is a long way off and it’s Leap Year for a lot more days yet 🙂 Leave a comment or pingback here or to any other challenge post to join in.

Happy Leap Year 2016! Are you making a 2020 vision?