Times Like these (MLA~Monthly Look Ahead)

It’s the month of May already! That means it’s Myalgic Encephalomyelitis Awareness Month, although the focus week is always usually 6th to 14th May [#MEAW2019], with #MEAwarenessDay on Friday 12th May 2019.

This year the UK’s MEAssociation is asking members and supporters to somehow #GoBlue4ME, although that’s a fund-raising prompt and I won’t be able to join in with fundraising efforts…

So I’ll be sticking with my purple MEA Tshirt (providing I get it laundered before then. Ahum.) It’s a shame most are going so red in the T-s with theirs, but that’s another story. Potentially. I could sign-up on the MEAssociation’s JustGiving page, however I don’t believe in asking what few friends and distant family and relatives I have to donate. If they wish to, or they might probably prefer to donate to another leading charitable cause.

Awareness raising doesn’t really cost all that much and there’s a lot of confusing, manipulative contrivances occurring in the field of information/misinformation. I pay my member subs as of rejoining last year, and a paying member much earlier in my long illness journey of my lifetime so far. So I done that and got the Tshirt. And some new books on M.E. that I so far only flicked through, as it’s much the same old hat info as ever, very solid foundations in clinical medical science and healthcare – and of course there’s the magazines. I always look forward to them and mostly enjoy them but there are things I find perplexing and annoying. E.g. funding-led services and potential negative influences of wealthy capitalists.

Unrest film – not sure I’ll have inclination or energy enough to try it again yet and there are some interesting looking more authentic short films to watch on youtube if my dongle stops gulloping my data allowance.

That’s a lot of me ME, me ME, me ME stuff again isn’t it! Not good for me ME as you could probably guess. Focussing on it amplifies the negative impacts.Obvious, yup.

Moving along… what am I planning for this month. No TV. Some music and physio-type movements Alexander technique style. I.e. the ‘a little of what you fancy might be good for you. Stretch wise, maybe juggling, jiggling, jigging to local shop or maybe even the park. Kick a ball and/or bounce it back. Gardening. Waiting for a wall and gates, maybe a fence, hoping not to be getting a burial plot with it. In case there’s been some of that – some odd digging up and re-walling further around. Whatever next? Balancing with necessary rest… #mentalHealthAwarenessMonth

Monthly Look Ahead logo designed by coolbeans4 wordpress blog challenge
don’t forget to visit challenge host coolbeans4.wordpress.com

Spring-cleaning time is here again. Hmm. I need to catch up with blog maintenance some too. as usual.

Ramadan starts anytime now or during next few days. Although I don’t practise or believe in religion I have Faith of a sort and I like to try and join in at home on my own with the fasting schedule if and when able. it also seems to suit my natural biological pattern most days, if not all. I might read some more of the Quoran app I downloaded for my android as I didn’t get far enough with that either.

I’m sure I’ve written similarly to all this previously. I’m humming an ha-ing over making a Recycled Book Reading Post this month (link in previous post to my other blog). I’ve not found my PAYG phone yet and had another nasty intrusion to my home while I was out. Very definitely not imagined. Food tampering again, quite potentially dangerous. An old ‘family friend’ she might call herself… Lady Macbeth like. Snooty floozy… i’d better leave bitchin’ there. I’d made it out of the house to turn up and vote at our local elections and it was interesting and I’ll maybe get a tourettes-type penalty for my minor panic at how interesting being so stupidly challenged was. At least I got my vote in the ballot box.

I wonderedwonderedwondered though if the daft cow not far away who registered my name at another local address would also get to vote or if my vote would be discounted for her supposed priority status and there’s a weird non-local regional ‘mothers’ group obtained lottery funding by deceptive methods who are steering local hate campaigns against some residents and getting innocents imprisoned as if it really is time to experience for ourselves in the UK exactly how things got so bad in Syria by way of all the dodgy go-fer-do-fer-ing. Maybe that’s over the top. but so is some white people religion. very. (and i’m white english if it must be called ‘white’.) Goodness knows.

I hope none of my writing is deemed ‘hate speech’. Political coercion and corruption and curtailments of usual humanity sometimes appear to be happening. 1970s childhood memories of ‘it’s a hard life, but it might not get so bad’. It looks really harsh circumstances in many a land and it seems flimsy and selfish to keep harking on. We are expected to speak up (write) about abuse, especially online abuse when we see it happening though. Sadly most ‘hate speech’ arrives via mainstream media and political spin.

Time to go and grab a bowl of something, goodness! hope it’s not too cold where you are. I’ll share a photopost or skywatch or something another day soon and try making more blogging effort. Maybe if you’ve got time you’ll visit over to read at the challenge host’s blog coolbeans4.wordpress.com/https://coolbeans4.wordpress.com/2019/04/30/monthly-look-ahead-may-2019/

Thanks for reading!


Previously AWOL and Late again

All apologies as usual… hope everyone (virtual neighbours, ‘acquaintances’ and {friends} are all doing okay and coping well with challenges of contemporary living… safe, happy and healthy as can be hopefully.

I’ve been immersed in elsewheres’ a little with a little creative writing mooc I tried and succeeded a few weeks ago (thankfully) and now of course it’s poetry symposium and so i’m just about keeping up with that well enough and enjoying continuing the American (English) language & cultural learning I can obtain from that mooc community participation. I’m still astounded by the differences that exist in our cultures and langauge despite the similarities. it’s quite fascinating. Frightening to realise the misinterpretations of English meaning by way of limited meaning of apparently same ‘English’ words in American Language use.

I’m finally after all this time no longer paying for stuff I’m not actually receiving and -still being charged for it unfortunately – so officially in dispute with my ISP and hoping they resolve things decently although while they are legally very in the wrong they have the advantage and just appear able to wreck long-term customers credit-rating and cause further deprivations to anyone disadvantaged enough to not afford or able physically to sort it or get a solicitor to sort it. But what a waste of fookin’money they are. Quite often. Never mind, the dongle I bought two years ago works marvellous and a £25 top-up might last three months while I’m too ill to use much rather than always paying over the odds…


There’s not much of the month ahead left, being this late into it. No idea what to write next…

Hoping to read this https://t.co/gnAmP443nS  about screen-writing but no idea WHY I might want to read it, just it looks interesting in my twitter feed and I might get back to it.

Listening to more music is always a huge pleasure whenever able …


Family time? Not getting round to much of that so far, as usual.

Snapping skywatch, missed a lorra-lot of days – and a lot of days miserable grey skies if I got a glimpse… often awake overnight most of summer and sleeping half the day away from early morning onward… quite helterskelter my current lifestyle, but i’ll get back to…erm, what IS my normal lifestyle – the last several years have been one thing after another – guess we all have that going on actually

So this month’s post…

I think I’ll leave it there and MAYBE i’ll get back here sooner rather than later and drop by y’all soon when visiting the blogosphere for a mosey round rather than just dashing in and out while I ahve to be somewhere else really really soon … yes #ishouldbesleeping.

As always, nevermind. See you soon, hopefully. Best Wishes all and Thanks for reading 😉

TFIB ~This Friday in Britain …

Well, most of us in Britain have too much cloud to see the lunar eclipse tonight. Typical and ironic after so many crystal clear skies. An informative BBC article and a NASA TV Livefeed on YouTube for those of us with adequate internet access. It’ll be interesting to see images captured by those fortunate enough to have a clear view eventually too. Patience then…

I daren’t mention my router currently behaving for a change because it’ll drop my signal as soon as it likes. Maybe it’s because I’ve been listening to Brian Harvey lately since his desperate plea to the British public to hear him out while he exposes controversial and complex truths that ‘the powers that be’ seem to wish to remain hushed. some shocking stuff and there’s another however many cover-up stories I hoped to touch on. But I’ll maybe say / write my piece another time and link it here instead.

Five minutes to midnight and I’m way behind my planned posting time. Friday’s nearly over. Guess I got distracted. Maybe I should stop ignoring the computer assistance that pops up now again begging me to let ‘her’ help me. I’m sure I’d rather not give my life so wholly to my computer software. However much I’m lacking I’m sure I don’t want Artificial Intelligence. Maybe that’s cutting my nose off to spite my face. Anyone out there actually use their OS assistant?

So, Friday here, in British Summer Time is now technically over…

… writing into Saturday for ‘British Isles Friday’ then…

Rather than focus on news items this Friday, my attention has been totally diverted to issues NOT entering the news…

In its entirety, this is not a jolly post. The information I’m writing about in the next portion is still quite new to me, mindbogglingly complex in some ways and absolutely profound issues of urgent UK public interest … as this segment needs a content warning re: child abuse discussion I’ll be continuing this second half of this post as a password protected post linked in the final paragraph. That will appear as soon as I rewrite the whole darned lot having cut it out then lost it from my clipboard during a human operative input error for snatching a moon screenshot from NASA TV. Doh! I can’t find it in revisions, dunno if it’ll turn up. 3:50am and I need to sleep.

[If you wish to read the continuation of this post but do not know the password to type in my blog to state as an adult reader and confirm that “I am over 18” then please use my contact form to request access assistance. I assure there is no graphic detail in this password protected content, no images of children or people, no dirty gossip etc. Disclaimer: It can be difficult to ascertain information while the mainstream media are failing to report issues adequately so while only including what I believe to be honest and credible representation of the alleged facts, my commentary may include errors and omissions.

I missed one or two general things and a sky photo or whatever else I had almost readied to add above for brightening up my post and not got round to that yet so might change up a bit along the way. Anyway, to read further, please click the link (not yet available) and enter the required password.

Thanks for reading this far. I must do better next time! If you have a British Isles topic of interest or theme you’d like me to include in a future post please add your suggestion in the comments and I’ll do my best.



Reblog: Sunrise on Planet Cistern

I find toilet humour irresistible, I don’t know why, but this photopost isn’t quite that but I do quite love it! – I missed my mundane Monday photo in lieu post again this week and wish I could capture something like this in my lav!



Sunrise on Planet Cistern

The weekly photo challenge is closing down for some reason, so the final theme is “all time favourite photos”. I am not a photographer by any means, I just take photos to decorate my poetry blog, but this one amuses me no end. I have sliced and diced it and used in a number of posts.

Now for the first time I will reveal its secret. The windows in our upstairs bathroom face south and in the late evening the sun shines through the  side windows and the glass shower doors and creates rainbow patterns on the walls. This particular pattern turned up behind the toilet cistern in the angle between the walls. I zoomed in as close as I could with my iPhone, took the photo then rotated it. The curved surface at the bottom is actually the shadow of the cistern.

Equipment used :…

View original post 7 more words


Jo’s writing contest is open until 31st May for 150 word submissions to the photo prompt via form at this link… (I think the give-away item for the prize-winner is maybe only available to those in U.S.)

A Creative PTSD Gal

Contest Starting TODAY

I’m going to rebel a little here at work and do something I’m not supposed to (blog during non-break hours) and get this going. Earlier this month I started a poll for a contest giveaway prize and even though I didn’t get many votes I’m still going to go through with it.

After much research, there were several options for me to run the contest but none seem to fit what I was wanting to do. I do have many bloggers overseas that Amazon giveaway doesn’t allow me to ship. After doing a little more research I have come to the conclusion that I got this. To make a few things clear. I am not affiliated with any of the products that I will be giving away. You will not have to purchase or pay for anything, just a little bit of your time.

I am a fan…

View original post 213 more words