February 2017’s Monthly Look Ahead

It seems like only a few days ago I was making January’s MLA post but I managed to achieve some of things in that post (in spite of my lately stresshead phase).

I write this post to join in with the event created by Coolbeans. I enjoy visiting there, even though I don’t share a similar zeal for watching movies or TV, it’s an uplifting blog to read. I liked the idea of using this event for my blogging strategy mostly, to make a monthly plan and set myself some goals. I can’t really plan for any other kind of activity much at all. Keeping up with anything consistently is quite difficult, but the laptop helps keep me awake, so, here we are again, only a day late this time. Hooray!

monthly-look-ahead

I’m using Coolbeans’ original event emblem pic this month (and hoping they don’t mind!) – this is for the purple reminding of remembrance.

February is a significant month for me relating to the loss of both my parents.My Dad died over 20years ago and my Mum’s death was just last year.

 

26 days of February to go… nowhere as fast as ever, on the slow

o does a todo list work in any blog theme or just P2? apparently it doesn’t work here!

  1. Blogging101 / writing101 refresh, SloPo and whatever other learning practises I can manage, trying to regain some increase to cognitive activity levels, while physically exhausted and too soon in pain to manage anything much when up on my feet. I must try not to wear myself out so much whenever, whatever.
  2. Still temp volunteering a little at Blogger’s World (front-end only posting-level access only, no admin responsibilities there); an authorstory to write for 9th, having had a break from posting for it and very grateful to others for taking up the call for posts. I messed up my attempt at helping for a creative writing post, but I’m not practised enough in formal writing, for one thing. Sincere apologies to Pam and others for failing that commitment! Shakespeare401 to work toward for May.
  3. Still needing to visit blogging neighbours more, but reading fatigue not helped by stress of impossible wifi access issues on and off for whatever reasons. I waste too much time unable to escape the stress impacts of the silliest little things! I can’t just ‘go do something less boring instead’ to recall that jingle line of an old fave UK kid’s program, called “Why Don’t You…?”
  4. With contagious cycles of current new onset illness (contracted while out shopping on August 27th 2016) and this negatively impacting my M.E. and other health issues, it’s unlikely I’ll be getting anywhere out and about much at all this month.But I can do very small excercise along the garden path or in the street sometimes (contagion is only a mucoid / close contact risk, potentially, apparently). Funny how the general population have no regard for preventing spread of their own contagions, generally, while some of us have to confine ourselves as if lepers! Maybe because people believe so much absurd NHS misinformation and can’t be bothered to uncover the facts that lay beyond two clicks deep. Socially transmitted diseases mislabelled as STD is also very annoying, so is denying healthcare to M.E. patients so as ‘not to pander to the idea of being physically ill’!
  5. Anyway, I’ve steamed ahead with getting it together better at SwishingUp. It’s been on the P2 theme for ages, but in blog style rather than using it in message-board format. Unfortunately, trying to return the ‘Edit’ label to the posts and pages by ticking an option for ‘front-end editing’ has ruined it and there’s no way to return to my previous chosen style using that theme. I managed some extra customisation there and have more admin practise ‘work’ to do there yet. I might have to look for a new theme similar to how I had it there before or just remove and reapply the theme. Doh! Still don’t know how margins got removed and other stuff messed up there…
  6. I’m still blogging all over the place now and then! Sorry if it’s confusing to have different ‘rooms’ – is it easier to think of them as just a row of scatty notebooks on a wordpress shelf? I know I’m not the only one practising content in different themes. I’ve got to get back to speed at Snailzpace Daily too while Stu’s away so much! Next to music, blogging’s good ‘medicine’, it seems.
  7. I’m still trying to gear up to doing something creative every day, like managing a small daily sketch – but the day often runs itself out without even cooking a proper meal or doing basic things. No good forcing myself off my blog(s), it doesn’t help to fail to achieve anything! I’ve even failed keeping my handscrawled ‘daybook’ again after a fairly good start for a few small days last month. I did this, I did that, gets a bit depressing! I would like to keep a journal but never have yet and if I can’t keep up with entering my daily detail in a simple diary, then, well… I just need to keep myself going somehow better.
  8. Hopefully this month I’ll continue what I intended to post for the DP ‘transcript’ prompt, although that could keep going a while too, here and there; then there’s ‘The memory of things’ that really caught my fancy as an inspiring topic.
  9. Nutritional improvements are quite a necessity as is,
  10. spring cleaning and domestic reorganisation(!) one square yard or cubic foot at a time!

 

 

 

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Sandbox 5 – in Difference

(Draft from 10/9/15 completed and published 15/09/2015, 12:44am)

The Sandbox Writing Challenge #5 from Calensariel (Impromptu Promptlings) asks us to explore how we feel we are different from anyone else, in other words, what it is that makes us unique.

I don’t at all like to think I am much different to anyone else, or at least that there are so very many others  with similarities of any individual characteristics and personality traits. I don’t think of myself as somehow different and certainly not ‘special’. We are all unique individuals and we all share some universal qualities. For anything I might suggest makes me unique, I know of so many other others with those uniquenesses that answering the prompt becomes impossible.

So, I’m retreating to a safe place to answer this question from – the safe sanctuary of my childhood and differences in comparison to my peer group I was aware of as a child.

cA4aKEIPQrerBnp1yGHv_IMG_9534-3-2typewriter
Image via unsplash.com (click the pic to visit the attribution-free, re-use as you please image service web-site from CREW)

I learnt to read and write very young, so much so that in my first infant school class my teacher had to show me how to use punctuation so she could easily make sense of my long strings of words. We had an old typewriter something like the one pictured above. I played at typing and writing with it often, although it was very difficult, especially for small fingers.

In junior school I got picked on a bit for usually finishing my work faster than anyone else – I was a quick writer. (I wish I was as reliable and quick writer now!) We sometimes had to use workcards and I’d finish three quite fully in the time most of the class did one. I gave up slowing down because it became painfully boring.

In contrast to my speed at writing, I used to find on the walk to school in the mornings that my legs would slow more and more the further I walked. I just couldn’t make them move at the consistent pace I’d started out at. I was supposed to walk with my younger brother and we set out at the same time but he’d never wait for me. I was probably almost always nearly the last one to arrive. We each had a turn to ring the morning bell and I only ever got to school in time for my turn once in the whole year. I remember that missing my turn used to upset me.

Although I wasn’t a sickly child as such, I was often sent to the sick room by my teacher because she could see when I was struggling with head pain. I’d go and lay down for a while and go back to class if I felt a bit better after a while. I got sent home ill a lot even when I wanted to stay at school and see if I’d be better a while later, but usually with swollen glands and sore throats and sickness not just the head pain. I was frequently visibly ill during P.E. lessons and made to sit out – until high school when you’re forced to carry on, until you have a doctors letter. I always enjoyed sport though not all that good at it – I did manage to play in the netball team a few times.

By the time I got to high school, with the walk there and having to walk from lesson to lesson in different parts of the school campus, I could no longer concentrate by the end of the school day. I could never do homework after school. I’d do mine in morning registration and break times and usually have it done by the end of lunchtime.

Some classes were so slow I’d have two lots of excercise books open, one for that class and one of homework due to be handed in at a later class. I’d work on my homework while waiting for the class to catch up and the teacher to tell us the next thing to do. I got in trouble for it sometimes but was one for speaking up for myself. It made no sense to me to sit and do nothing while functional enough to manage both unless the teacher was going to give me something else to do. Most couldn’t or wouldn’t because they had their whole class lesson plan and I never ever agreed to do lines and they couldn’t make me. I didn’t see why they should give me a punishment for trying to study during class time even if it was ‘the wrong subject’!

By the time I was in my third year at high school I’d become very ill after a serious chest infection caught during a school exchange trip to France. I was lucky in one way that my illness was obvious and witnessed by teachers. My doctor wanted me to be admitted to hospital I’d become so seriously ill after returning home. My mum had trained as a nurse when she was younger and insisted she could look after me better at home and our doctor agreed. I don’t remember that chunk of it at all.

After six months away from school I started just going in the afternoons, as soon as I’d woken up and got ready and felt able to walk. But then other days I’d be too ill to go at all. It caused some confusion as my doctor had said I mustn’t go to school while so ill and I wanted to go anytime I was well enough so would just turn up and sign in at the office. In a good week I’d make it to school for two part days a week. I’d usually try and get there before lunchtime – or as early as possible – to actually see my friends while there. Otherwise I’d just see them to walk home with after, unless I had to be taken home too ill to stay at school. 

Some teachers complained to me that I couldn’t treat school as if a hotel and turn up when I liked. In the end I’d fallen out with most of my teachers, most of whom believed you cannot possibly pass an exam without attending every class, benefitting from their teaching and doing all your homework. I had no tuition and had to spend any time in school in either the art room or the library for all the last two years of my schooling if I managed to get there. My English teacher told me I’d never pass my ‘O’level – I met her in the corridor having just collected my grade ‘A’ and jumped for joy waving it at her.

I wouldn’t have been allowed to take my exams if my mum hadn’t have been assertive and gained support of my year head as most teachers were against my entering exams. I was too ill for half of them but acheived an average number of passes. I had to leave my art exam early and couldn’t go for the second paper and just missed a ‘pass’. Some of the girls were catty about it but they always had something to be catty about at something. Even without the exam I was the only one accepted to the art course at our local college – but was too ill to sustain full-time activity and didn’t take my deferred place the following year because I preferred my part-time job as a shop assistant.

None of the above makes me unique, though I was quite unique among my peers for my tough stance against the unrightful oppression my educators would attempt to deliver. It wasn’t that I refused to accept authority, but that authority had to be just. 

Tens of thousands of children and young people (and probably many more) grow up with the same medical condition I had. Hundreds and thousands have the same/similar condition. What is coined as ‘recovery’ or ‘remission’ is often never a full return to health and learning to manage with a baseline of activity that might allow some work but with limited social life. People in that ‘bracket’ often don’t admit to still being affected for the horrendous prejudice and discrimination that still occurs.

I also believe there are many more people from the ‘lower classes’ who will never be diagnosed and manage day-to-day life somehow. Maybe some accept there illness as ‘depression’ – it’s become a popular dustbin diagnosis for a lot of people complaining of tiredness and lethargy and there’s drugs to foist upon them.

Among my ‘peer group of M.E. sufferers’ I often feel like there aren’t many of us from poorer backgrounds and council estate upbringings –  and having attended ‘state secondary school’ doesn’t make a person the same ‘lower class’ as I grew up in.

I believe I had ‘it’ (Myalgic Encephalomyelitis) all along. People generally, the NHS, many practise general doctors, the welfare system all expect you to ‘get better’ or experience recovery. How do you get better after nearly fifty years of lifelong illness? You recover to an extent from the very severe periods of illness or the phases of viral associated illness that wipe you out but leave you with severe post-viral fatigue. I think these are misunderstood as ‘M.E. relapses’ when they’re viral illness of new onset. A lot of new onset illness and symptoms are ignored by doctors because M.E. is a catch-all whole body disease or whatever other reasons they have for medical neglect and unscientific practise (like following NHS business focussed guidance).

My mum still says I didn’t have M.E. until the doctors diagnosed it after I was fourteen. She still says that like the doctors told her in my junior school years, my tonsils were poisoning my body. Why they didn’t stop poisoning my body after they were surgically removed then I’ll never know.

(I keep finding myself writing about this when it’s actually one of the last things I’d choose to be writing about. I don’t want to be ‘an M.E. blogger’ but I can’t escape my reality. It always seems selfish and the underestimation of the impacts compared to what are seen as more serious conditions makes it seem like simply whinging. Maybe that’s exactly what this writing became, airing a whinge…)

a 3×3 list, likes, learning and wishes…

This post was inspired by Margot’s list format here – thank you Margot for demonstrating a really good way of using the task prompt! 

I really enjoyed Margot’s use of threes to make a list for each of the suggested themes. I also felt that focussing on the day in hand was an excellent idea. I’ve not seen another like it yet, but then it’s impossibIe to keep up with all co-learner posts. I was so impressed I just had to try out this method, borrow and adapt the structure for a list of my own.

Things I like about today:

  • another day of being creative in at least some minimal way
  • that a recent new blogging friend I have much respect and admiration for paid me the honour of writing a wonderful spontaneous poem in a comment to me (and for all the wonderful people in the blogosphere)
  • that I still have a home, my dog and a garden on the edge of a beautiful area of the English countryside.

Things I’ve learnt or been reminded of today

  • I should set weekly time to dust and polish my posts – sort stray typos etc, presentation issues and also for finding /adding images
  • that I often need to go the long way round in resolving a simple basic task!
  • forgetting to feed my dog, she we will destroy something of mine in the house while I am present in the same room and don’t even notice

Things I wish for today

  • that I can afford heating soon because I’m cold, it worsens my symptoms and I’m already wearing two thick cardigans
  • that writing101 assignment tasks came out at 8 or 9am GMT rather than 0:00GMT so I’m not sub-consciously eagerly awaiting the next assignment brief and disrupting my sleep cycle! 
  • that I had a magic wand to end the suffering of others first and hopefully eventually myself also.

All very impossible and /or selfish wishes! Most wishes often are, or they’re not a wish, but an aim, goal or objective. I don’t really believe in wishing in threes,
which is one of the reasons why the header I ‘commissioned’ has four dandelion clocks!

 I found I”ve had to go round the long way to achieve the list task and this my fourth attempt, though I actually now also have a list of potential lists to make, having worked through this far. All my writing101 responses at their various venues are indexed here, should you be curious to check out what I’m getting up to during writing101 and maybe have a lucky dip at something you might fancy reading or browsing (word counts and post types included in the index).