Times Like these (MLA~Monthly Look Ahead)

It’s the month of May already! That means it’s Myalgic Encephalomyelitis Awareness Month, although the focus week is always usually 6th to 14th May [#MEAW2019], with #MEAwarenessDay on Friday 12th May 2019.

This year the UK’s MEAssociation is asking members and supporters to somehow #GoBlue4ME, although that’s a fund-raising prompt and I won’t be able to join in with fundraising efforts…

So I’ll be sticking with my purple MEA Tshirt (providing I get it laundered before then. Ahum.) It’s a shame most are going so red in the T-s with theirs, but that’s another story. Potentially. I could sign-up on the MEAssociation’s JustGiving page, however I don’t believe in asking what few friends and distant family and relatives I have to donate. If they wish to, or they might probably prefer to donate to another leading charitable cause.

Awareness raising doesn’t really cost all that much and there’s a lot of confusing, manipulative contrivances occurring in the field of information/misinformation. I pay my member subs as of rejoining last year, and a paying member much earlier in my long illness journey of my lifetime so far. So I done that and got the Tshirt. And some new books on M.E. that I so far only flicked through, as it’s much the same old hat info as ever, very solid foundations in clinical medical science and healthcare – and of course there’s the magazines. I always look forward to them and mostly enjoy them but there are things I find perplexing and annoying. E.g. funding-led services and potential negative influences of wealthy capitalists.

Unrest film – not sure I’ll have inclination or energy enough to try it again yet and there are some interesting looking more authentic short films to watch on youtube if my dongle stops gulloping my data allowance.

That’s a lot of me ME, me ME, me ME stuff again isn’t it! Not good for me ME as you could probably guess. Focussing on it amplifies the negative impacts.Obvious, yup.

Moving along… what am I planning for this month. No TV. Some music and physio-type movements Alexander technique style. I.e. the ‘a little of what you fancy might be good for you. Stretch wise, maybe juggling, jiggling, jigging to local shop or maybe even the park. Kick a ball and/or bounce it back. Gardening. Waiting for a wall and gates, maybe a fence, hoping not to be getting a burial plot with it. In case there’s been some of that – some odd digging up and re-walling further around. Whatever next? Balancing with necessary rest… #mentalHealthAwarenessMonth

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Spring-cleaning time is here again. Hmm. I need to catch up with blog maintenance some too. as usual.

Ramadan starts anytime now or during next few days. Although I don’t practise or believe in religion I have Faith of a sort and I like to try and join in at home on my own with the fasting schedule if and when able. it also seems to suit my natural biological pattern most days, if not all. I might read some more of the Quoran app I downloaded for my android as I didn’t get far enough with that either.

I’m sure I’ve written similarly to all this previously. I’m humming an ha-ing over making a Recycled Book Reading Post this month (link in previous post to my other blog). I’ve not found my PAYG phone yet and had another nasty intrusion to my home while I was out. Very definitely not imagined. Food tampering again, quite potentially dangerous. An old ‘family friend’ she might call herself… Lady Macbeth like. Snooty floozy… i’d better leave bitchin’ there. I’d made it out of the house to turn up and vote at our local elections and it was interesting and I’ll maybe get a tourettes-type penalty for my minor panic at how interesting being so stupidly challenged was. At least I got my vote in the ballot box.

I wonderedwonderedwondered though if the daft cow not far away who registered my name at another local address would also get to vote or if my vote would be discounted for her supposed priority status and there’s a weird non-local regional ‘mothers’ group obtained lottery funding by deceptive methods who are steering local hate campaigns against some residents and getting innocents imprisoned as if it really is time to experience for ourselves in the UK exactly how things got so bad in Syria by way of all the dodgy go-fer-do-fer-ing. Maybe that’s over the top. but so is some white people religion. very. (and i’m white english if it must be called ‘white’.) Goodness knows.

I hope none of my writing is deemed ‘hate speech’. Political coercion and corruption and curtailments of usual humanity sometimes appear to be happening. 1970s childhood memories of ‘it’s a hard life, but it might not get so bad’. It looks really harsh circumstances in many a land and it seems flimsy and selfish to keep harking on. We are expected to speak up (write) about abuse, especially online abuse when we see it happening though. Sadly most ‘hate speech’ arrives via mainstream media and political spin.

Time to go and grab a bowl of something, goodness! hope it’s not too cold where you are. I’ll share a photopost or skywatch or something another day soon and try making more blogging effort. Maybe if you’ve got time you’ll visit over to read at the challenge host’s blog coolbeans4.wordpress.com/https://coolbeans4.wordpress.com/2019/04/30/monthly-look-ahead-may-2019/

Thanks for reading!

Monthly Look Ahead ~ April 2019

I really can’t believe it’s been six months since I managed my blogging enough to make Monthly Look Ahead ! (This link opens in new tab to challenge host’s April MLA post.)

I finally found my long since misplaced mobile phone, dropped in my home over two and a quarter years ago. It’s long since out of contract but a handy camera to have to hand. Oddly enough it turned up in the pocket of one of my old jackets, although I was certain it had fallen behind and under furniture where I couldn’t reach it!

I’ll be looking forward to spending more time outdoors appreciating nature, hopefully.

I don’t usually succeed in capturing photos of birds while skywatching, I’m far too slow and shaky, but I snapped this handsome creature a couple of days ago whilst outside in my garden…

Possibly a crow; a large black bird in flight carrying a twig in its' beak.

Now, while I found my old lost phone, I managed to drop and lose my new mobile phone! Again, I dropped it at home, indoors somewhere, during absolute exhaustion and ongoing problems with illness(es). I expected to find it but it somehow can’t be seen for looking. Fortunately it’s PAYG not contract so I’m not losing anything but use of it for now. Hopefully there’s not been trespass and theft on the rare occasion I leave the house. I expect it will turn up just like my old one has, only much sooner…

Hmmm. I had hoped to be enjoying the A to Z challenge again this month but so far it’s not happening. Other than as an active reader, when I get there to it. I’ve some lingering challenges to finish up from last year. Hoping for some improvements in consistency, reliability sustainability…

I’ll be trying to catch up with reading blogs … and I’m part way through a couple of books and hope to finish reading these before this month ends(Link opens in new tab to Recycled Book Reading Challenge post at my other blog.)

I’m not particularly looking forward to Easter as I can’t help feel it’s been scheduled for the wrong time of year and as if we missed it already. Mother’s Day seemed odd being at the end of March too and Monday 1st felt like it should have been a Bank Holiday here in England.

Brexit! Something else I’m not at all looking forward to! We’ve already been experiencing the dodgy influences of capitalist food manufacturing and retail intrusions, such as dodgy food labelling, failure to meet UK Law on Trading Standards and the Trade Descriptions Act in all kinds of ways, eg. cyanide being used in anti-caking agent for salt (and the EU food safety website appearing hacked as if cyanide’s being deregulated!) Fingers crossed Brexit won’t happen, but I guess that’s naiive and we’ll have to grin and bear the ‘deMOCracy’.

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Time out might have to wait, along with Art…

Having purchased the streaming file for the ‘Unrest’ film instead of the download file I’d expected and not noticing the product change at time of purchase, I bought the DVD before Christmas and though I played it once I haven’t actually watched it properly yet. It’s a joke really. While thousands upon thousands of people have bigged it up and absolutely lauded it I’m not sure I’ve seen a reasonable review of it since it came out. Perhaps one (review) but I get the feeling no-one’s supposed to actually talk about that project other than in Emperor’s New Clothes style. Crazy stuff. At least the DVD front cover makes clear the main personae ARE actors.

I treated myself to a portable small screen DVD player to watch it on, avoiding putting the disc in my laptop in case the intrusions are as dreadful as they’ve been having looked prospectively as a potential customer at buying the film while it was being so heavily promoted. I might sooner watch ‘The Devil Wears Prada’ as that’s been on my ‘To be watched’ shelf for several years longer than ‘Unrest’ has lingered there.

The horror (snuff) film Unrest has afforded full page ads since the dangerously confusing and oppressive #MECFS and #MillionsMissing campaigns started. Live social media screenshots prove capital return was the (amateur standards) project priority, with anyone needing to borrow broadband connection to watch a streaming file counted and tallied as revenue loss and piracy. Anyway, one day I’ll get round to viewing the film attentively and giving it a fair review – this month? Doubtful, somehow. I should probably concentrate on HOW do I get their bogus malicious software strings out of my OS, assuming their capitalist wealth and influential powers outweigh the reach of advanced technology providers? (Maybe it’s been auto-fixed in the background… )

I also can’t help wondering how the ‘product’ changed over time and the potential invasions of privacy while disabled   community were excluded from the viewing public for so long. Obviously these issues are still bugging me…

Positive thinking, affirmations, stress management, holistic self-help healthcare, improving nutrition, making life more fun, all these are on my ‘looking forward’ with no real list at all. Shadow boxing, stretching and strengthening… at least, one minute or so at…

An All Fool’s Day shadow of myself, on the right path…

Time in the garden? One neighbours fence got repaired. Again. (Thank goodness the labourer wasn’t really a gravedigger, merely arrived equipped as if one, with no advance warning – unbrushed I maybe scared him as much as he’d frightened me…) and MY boundary fence the other side blew down following the other cowboy outfitter repair crew wrecking it “rotten”.

April’s garden flowers 2019 (photo snapped by myself)

Hmm, I was keeping this short. April. A time for remembrance and celebrations of life. A mixed bag of emotion. “The memory of things…” (Pam, inspiring and respected.) Appreciating…

Oh yeah, and American Poetry Month, with all the highs and lows of learning more about American Literature (it was mostly excluded in State schooling even through Higher Education teachings, due to the criminal publishing industries, although I had no idea how deep and far that stretches throughout modern American culture. Boy I need to practise not seeming so anti-American in my reflective commentaries! HOW to put it more nicely?!







Returning to the Mundane Monday Photo Challenge?

On reflection, it’s a shame I wasn’t on the ball New Year’s Eve or I could have taken part with a photo made on – or nearer the day – unless you count this offering showing one of my New Year’s Eve indulgences during my ‘quiet night-in’ …

However that’s not as fitting a response for MMPC #191 prompt as this photo I’d taken a year ago, on the 4th January 2018:

I’m not sure quite what it is about this photo that makes it so appealing to me. I took a couple of other photos on that same day a year ago that had clearer reflections in different puddles – and one of the sky and rooftops opposite reflecting in the outside of my living room window. Maybe it’s something about the tone and textures and the absolutely mundane and abstract nature of the image that captivate my attention.

Fingers crossed I can keep up with a blogging commitment and return in good time for prompt #192 this coming Monday and onward! If I were making New Year’s Resolutions that goal would be quite high on my list.

(P.S. my uploads are screenshots from my photos to reduce the upload size while I’m getting by with limited mobile data allowance.)

Previously AWOL and Late again

All apologies as usual… hope everyone (virtual neighbours, ‘acquaintances’ and {friends} are all doing okay and coping well with challenges of contemporary living… safe, happy and healthy as can be hopefully.

I’ve been immersed in elsewheres’ a little with a little creative writing mooc I tried and succeeded a few weeks ago (thankfully) and now of course it’s poetry symposium and so i’m just about keeping up with that well enough and enjoying continuing the American (English) language & cultural learning I can obtain from that mooc community participation. I’m still astounded by the differences that exist in our cultures and langauge despite the similarities. it’s quite fascinating. Frightening to realise the misinterpretations of English meaning by way of limited meaning of apparently same ‘English’ words in American Language use.

I’m finally after all this time no longer paying for stuff I’m not actually receiving and -still being charged for it unfortunately – so officially in dispute with my ISP and hoping they resolve things decently although while they are legally very in the wrong they have the advantage and just appear able to wreck long-term customers credit-rating and cause further deprivations to anyone disadvantaged enough to not afford or able physically to sort it or get a solicitor to sort it. But what a waste of fookin’money they are. Quite often. Never mind, the dongle I bought two years ago works marvellous and a £25 top-up might last three months while I’m too ill to use much rather than always paying over the odds…


There’s not much of the month ahead left, being this late into it. No idea what to write next…

Hoping to read this https://t.co/gnAmP443nS  about screen-writing but no idea WHY I might want to read it, just it looks interesting in my twitter feed and I might get back to it.

Listening to more music is always a huge pleasure whenever able …


Family time? Not getting round to much of that so far, as usual.

Snapping skywatch, missed a lorra-lot of days – and a lot of days miserable grey skies if I got a glimpse… often awake overnight most of summer and sleeping half the day away from early morning onward… quite helterskelter my current lifestyle, but i’ll get back to…erm, what IS my normal lifestyle – the last several years have been one thing after another – guess we all have that going on actually

So this month’s post…

I think I’ll leave it there and MAYBE i’ll get back here sooner rather than later and drop by y’all soon when visiting the blogosphere for a mosey round rather than just dashing in and out while I ahve to be somewhere else really really soon … yes #ishouldbesleeping.

As always, nevermind. See you soon, hopefully. Best Wishes all and Thanks for reading 😉