Source: Seasons…. Writing

Hey it’s really nice to see a spring in someone’s step and stepping into sunshine or snow sending love and good wishes and hopefully so… it’s really nice meeting real nice blogging neighbours in this wonderful virtual world here at WordPress! i dunno about you guys but I love it here (WordPress generally, I don’t mean ‘at my blog’! BUT I haven’t been getting around and about as much as I would have liked BUT I know you don’t mind cos isn’t it nice sometimes to get a bit of peace and quiet and taking time with other peeps ūüôā

So, wherever you are in the world, hopefully that’s not in floods, wading through waste-water’s no fun… and thankfully here, I’m not, but some may have been, but this lunchtime, the sun is shining and the weather is fine. ¬†(is this post too long for a ‘status’ format?)

I love Sarah’s blog(s) and the co-learning encouragement and virtual coffees and that’s a great Springy post I thought I’d share while saying thanks to you all who drop by here and there too ūüôā #blogging101 was fun trailing through july and august in our own time and at a comfy pace but 2015 was an age ago now! Y’all planning a two-year(or-plus) reunion splash post for virtual summer fun? Or we missed your earlier classes blogging celebratory posts already…? Anyone ready to help us save Blogger’s World somehow, stop it slip sliding away while Anand, Rashmi, K. and all the others who puts so much effort in early on and along the way – is your commenting or author level access even working there? Today’s theme is sposed to be ‘tuesday trivia’ if anyone’s up to posting to it, do it! Be nice to see some returning community spirit but ‘we gotta figh,.. for the right,.. to p-a-r-t-y…’ as the Beastie Boys would lead us to believe! #everydayinspiration (hook’em wivvaquote’ll never work, will it???)

 

Marching on – it’s MLA time again!

Here we are again as Monthly Look Ahead flies round so soon…

…and there’s much to look forward to these next few weeks. I’ll be another whole year older by the end of the month – and glad that doesn’t happen every month.¬†Whether I’ll be any the wiser for my older age remains to be seen, but I’d hedge my bets toward ‘most unlikely’.¬†

As usual there’s ongoing blogging goals. I can’t be bothered to think about them much just now, kind of mapped out already and more of the same ole same ole and lots of lingering to-do’s. ¬†I don’t know how long this ‘blogging my way back to life somehow’ might take, but I’ll get there, wherever ‘there’ might be. Maybe I just need more determination (to get a life, not to blog! LOL). This month I’m still¬†looking to get my blogging house in order and retaking the BloggingU customisation and everyday-inspiration ‘courses’, but not from here and hopefully not in my usual scatterbrained here, there and everywhere ways…

I’ll be carrying on my appreciation of Cid Corman and delving into getting to know Frank O’Hara’s poetry better. Hopefully I’ll be immersing ¬†with reading and experiencing poetry aplenty, learning some more about more poets and maybe even trying to write some more poems myself too. Maybe it’ll help me drag myself into being more creative in other ways too, like getting a daily drawing routine going – it’s been a failing goal for much too long. I definitely could use some better therapeutic activity time and a lot more often.

Somewhere to hand I’ve some packets of flower seeds that should still be good for sowing. Increasing exposure to natural daylight and more outdoor fresh air would be a very good idea. Fairweather gardening¬†might¬†be do-able in small bursts, providing winter doesn’t strike with avengeance. Even if it does, there should be some window for gardening type enjoyment and¬†the fencing really needs patching and propping up more sufficiently.

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This panel doesn’t really need my shadow to prop it up, unlike other parts in need of more than my shadow…

Although I’ve not yet made it onto the bouncerciser at all yet, nor my wii-fit,¬†and¬†even though excercise can be counterproductive¬†they are at least available if ever I feel up to some. I live in hope. I used to love walking, just getting anywhere at all under your own steam, but my capacity and tolerance has been reducing year on year for the last eight years. It’s quite concerning to now, or still, be at this current stage and on the one hand seems totally unrealistic to be even thinking about excercise and on the other hand seems totally defeatist not to be. I’m managing up and down the stairs a bit better again – and quite often in comparison to a while ago. So, being grateful for small mercies…

I’ve been managing to eat more regularly without cooking much as such¬†and have restarted co-enzymeQ10 supplements. They’re no good without good food enough and food’s not much good with insufficient enzyme production. So keeping up with food and nutrition and making sure to enjoy food is definitely on the menu again. Washing up may be off the cards most days of the week but I’m making sure not to make much of it by labour-saving strategies¬†and by letting it wait around looking like still life. I even got photos to prove it but I’m not sharing those here and now. I might draw from them when I’ve washed up forgetting to get round to drawing any beforehand.

Anything else besides will be an added and appreciated bonus and be bound to get a mention – I almost forgot to add that I’ve managed quite a lot of reading books for pleasure these last few weeks. That makes a nice change. I’m quite enjoying reading Scott Nicholson’s post-apocalyptic ‘After’ series, they’re quite an easy read and very more-ish; I already finished the four books of his that I bought and so need to buy more – or find a better way of getting kindle books and ending my boycott, cos kindle versions are loads cheaper as well as having the environmental advantage and the instant delivery. Yet a real book will still work for very much longer than any gadget and there’s nothing quite like turning a page.

I haven’t forgotten my family, honestly, even if it’s not what it looks like; we’re quite long overdue for a visit but will get around to it eventually, one of these days…

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Monthly Look Ahead event hosted by Coolbeans4, visit their post for March here

 

Farewell February, onward March!

This was the scene beyond my backyard, on yesterday’s last morning of February…

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… and two days ago I spotted these two tiny snowdrops finally making their annual emergence and remembered to capture this somewhat hasty and poorly composed snap of them while outside with my camera to hand…

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Maybe this year I’ll manage something better with the garden! I used to love gardening but for all sorts of reasons I haven’t managed any here enough. These bulbs were brought with me from my previous garden at the family home I left behind. Nothing else survived beyond the first year. Bordering a country park and nature reserve type area there are creatures like moles around and my gardens shown signs of molehills for a few months now, so I wonder if the bulbs get eaten perhaps – or maybe there’s just too much shade and damp.

Here in the Midlands we haven’t really had winter so far, although it was cold today and there had been warnings of ice to look out for, though no sign of any by the time I got myself outside. Until ‘storm Doris’ hit last week – ripping my fences to shreds some more – winter has seemed unusually and eerily quiet and the skies have all too often been jewel shades of blue. I haven’t kept a sky-watch as much as I’d hoped for being quite out of sorts, as is embarrassingly obvious when looking back at my scatty ranting posts(!) Never mind, could be worse and¬†if March winds doth blow, we could still soon have snow¬†comes to mind, (but apparently that rhyme should be ‘The North wind doth blow…’¬†it’s just not how I remember it).Really, it should be daffodils making an appearance, given that ¬†I did buy some daff-bulbs for this garden once upon a time¬†and¬†as it’s St. David’s Day… but two tiny snowdrops are better than none at all and will have to suffice for now. Maybe next year’s spring garden will be blooming lovelier… in the meantime, Happy March onward, hopefully ūüôā

 

The Memory of the Thing Is (2)

I’m not having a lot of luck over on my blog in the Sketch theme and for some reason the ether ate my photo of a drawing I made yesterday and tried to share there this morning, along with a poem. I’ve put that on Facebook in order to try sharing it with the mooc community as it was a response to an excercise. I liked it better in the purple font I drafted it with, but had typed it into notepad then pasted it over to get the line spacing how it needed to be and my dashboard locked down and I had another stressy wasted day trying to resolve whatever in my settings was making stuff weird again.

You might not want to read it on Facebook, or at all, but here it is again.

Or it was. And now its gone. What IS going on at WordPress? Did I slip on my mobile phone screen while trying to post? I have lots of problems using this although I have managed a small few times. Oh well. Another post losing MY content! I’ll get my poem on here sometime when something works. Its at my public personal facebook (colette.bates.58) not to mix me up with my virtual volunteer. Cuz. Tho I’m mixing me up fine all by myself! It opens fine in the window ¬†there above.

I got stupidly overly concerned that it (post prevention and photo-uploads vanishing) was some kind of political overanxious control from the totalitarian DTrumpUS freakystuff that our media-hype is leading us to maybe believe. As if there could be a yankeetakeover of the UK – the good women of nearNotts with their potato mashers are enough to scare off any threat, so legend has it!

I’m wondering if I should bother with much else if it’s going to be shoddy at this draughty old run-down station. There are holes all over this platform. Is it some silly bitches’ stilettoes? They tend to be ruinous with all kinds of floors!

February 2017’s Monthly Look Ahead

It seems like only a few days ago I was making January’s MLA post¬†but I managed to achieve some of things in that post (in spite of my lately stresshead¬†phase).

I write this post to join in with the event created by Coolbeans. I enjoy visiting there, even though I don’t share a similar zeal for watching movies or TV, it’s an uplifting blog to read. I liked the idea of using this event for my blogging strategy mostly, to make a monthly plan and set myself some goals. I can’t really plan for any other kind of activity much at all. Keeping up with anything consistently is quite difficult, but the laptop helps keep me awake, so, here we are again, only a day late this time. Hooray!

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I’m using Coolbeans’ original event emblem pic this month (and hoping they don’t mind!) – this is for the purple reminding of remembrance.

February is a significant month for me relating to the loss of both my parents.My Dad died over 20years ago and my Mum’s death was just last year.

 

26 days of February to go… nowhere as fast as ever, on the slow

o does a todo list work in any blog theme or just P2?¬†apparently it doesn’t work here!

  1. Blogging101 / writing101 refresh, SloPo and whatever other learning practises I can manage, trying to regain some increase to cognitive activity levels, while physically exhausted and too soon in pain to manage anything much when up on my feet. I must try not to wear myself out so much whenever, whatever.
  2. Still temp volunteering a little at Blogger’s World¬†(front-end only posting-level access only, no admin responsibilities there); an authorstory to write for 9th, having had a break from posting for it and very grateful to others for taking up the call for posts. I messed up my attempt at helping for a creative writing post, but I’m not practised enough in formal writing, for one thing. Sincere apologies to Pam and others for failing that commitment! Shakespeare401 to work toward for May.
  3. Still needing to visit blogging neighbours more, but reading fatigue not helped by stress of impossible wifi access issues on and off for whatever reasons. I waste too much time unable to escape the stress impacts of the silliest little things! I can’t just ‘go do something less boring instead’ to recall that jingle line of an old fave UK kid’s program, called “Why Don’t You…?”
  4. With contagious cycles of current new onset illness (contracted while out shopping on August 27th 2016) and this negatively impacting my M.E. and other health issues, it’s unlikely I’ll be getting anywhere out and about much at all this month.But I can do very small excercise along the garden path or in the street sometimes (contagion is only a mucoid / close contact risk, potentially, apparently). Funny how the general population have no regard for preventing spread of their own contagions, generally, while some of us have to confine ourselves as if lepers! Maybe because people believe so much absurd NHS misinformation and can’t be bothered to uncover the facts that lay beyond two clicks deep.¬†Socially transmitted diseases mislabelled as STD is also very annoying, so is denying healthcare to M.E. patients so as ‘not to pander to the idea of being physically ill’!
  5. Anyway, I’ve steamed ahead with getting it together better at SwishingUp. It’s been on the P2 theme for ages, but in blog style rather than using it in message-board format. Unfortunately, trying to return the ‘Edit’ label to the posts and pages by ticking an option for ‘front-end editing’ has ruined it and there’s no way to return to my previous chosen style using that theme. I managed some extra customisation there and have more admin practise ‘work’ to do there yet. I might have to look for a new theme similar to how I had it there before or just remove and reapply the theme. Doh!¬†Still don’t know how margins got removed and other stuff messed up there…
  6. I’m still blogging all over the place now and then! Sorry if it’s confusing to have different ‘rooms’ – is it easier to think of them as just a row of scatty notebooks on a wordpress shelf?¬†I know I’m not the only one practising content in different themes. I’ve got to get back to speed at Snailzpace Daily too while Stu’s away so much!¬†Next to music, blogging’s good ‘medicine’, it seems.
  7. I’m still trying to gear up to doing something creative every day, like managing a small daily sketch – but the day often runs itself out without even cooking a proper meal or doing basic things. No good forcing myself off my blog(s), it doesn’t help to fail to achieve anything! I’ve even failed keeping my handscrawled ‘daybook’ again after a fairly good start for a few small days last month. I did this, I did that, gets a bit depressing!¬†I would like to keep a journal but never have yet and if I can’t keep up with entering my daily detail in a simple diary, then, well… I just need to keep myself going somehow better.
  8. Hopefully this month I’ll continue what I intended to post for the DP ‘transcript’ prompt, although that could keep going a while too, here and there; then there’s ‘The memory of things’ that really caught my fancy as an inspiring topic.
  9. Nutritional improvements are quite a necessity as is,
  10. spring cleaning and domestic reorganisation(!) one square yard or cubic foot at a time!

 

 

 

ME and mine

One of the really BIG problems of having lifelong Myalgic Encephalomyelitis is the misinformation generated widely in societies about chronic fatigue. Nowadays, the popularisation of the dustbin diagnosis of Chronic Fatigue Syndrome (as it was wellknown by in medical circles prior to the formalisation of the CFS strategy) is having devastating negative impacts on people with all kinds of specific medical conditions including cancers, HIV, multiple sclerosis, heart disorders, strokes – you name it and I’d bet you’d find someone denied a true clinical diagnosis and necessary treatment and support services under this bizarre outcome of CFS Strategy misimplementation.

Chronic fatigue is a general population issue and can affect anyone for varying reasons. Post-viral fatigue, similarly. Neither of these conditions of general temporary ill health are ‘a syndrome’. Neither CFS nor PVFS are necessarily M.E. [I experience PVFS as well as my generalised M.E. type health states.]

A smokescreen has been created with very widespread CFS propoganda by swagbaggers and swipesters – even the M.E. charities are forced to play along with furthering the CFS field in order to sustain their funding revenue.

M.E. patients are denied support as a result whilst the general public assume we receive support through CFS implementations. Nobody bothers to go more than two or three clicks to check information enough and so dole out repeated nonsense and assume they know because so-and-so-(web)info-states…

Nobody much reads the entire NICE2007 guidelines to understand the breadth of clinical knowledge, the limitations of NHS provision, the patient expertise and the knowledge of clinical experts. Propoganda still leads us to believe ‘doctors cannot diagnose this’!

The NICE2007 guidelines very clearly state that anyone diagnosed with M.E. or any other lifelong disabling illness cannot be diagnosed with Chronic Fatigue Syndrome. This guidance was due to have been updated in 2014, but I didn’t notice any consultation, nor any news of it, but also haven’t checked yet. There was no such diagnostic label as M.E./C.F.S. in the 2007 guidance but C.F.S/M.E. is diagnosed after an initial Chronic Fatigue Syndrome referral is confirmed as illness with Myalgic Encephalomyelitis.

This is a very complex issue that I didn’t wish to write about here today. To an extent I just have! [Only for interference with my use of my blog that distracted me away from my original post intention!]

It’s incredibly annoying, having a confirmed clinical diagnosis of Myalgic Encephalomyelitis, with devastating lifelong disabling impacts, being expected to meet a class-based stereotype of what my human condition should look like. It’s also annoying when government money intended to help patients is usurped for job-creation schemes for psychological based therapies to the detriment of biomedical research. of course, there are more annoying things, and for us all!

Scientific findings since 1984 have been locked away under the OSA, allegedly – possibly along with my own genetic data from my original severe phase as a teenager and possibly those of other patients.

Books like the one I was reading in the photo that refused to upload to my media library at my other blog, lumping causes of ‘fatigue’ under ’emotional and behavioural problems’, trivialising even general fatigue, and ignoring so many physiological factors, as if you can think yourself out of fatigue states, only adds to those things that can make therapies more harmful for the patient.

The memory of things

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I came across my loose page the other day. I’ve been in health decline ever since I moved to this house. It’s a shame. Especially as it seems to have been a deliberate public-service/state-led ploy with full knowledge of the impacts of my lifelong disabling medical condition. The Equality Act 2010 has offered no protection whatsoever. But then, when you (I) find a healthy looking lady on LinkedIn using my name and¬†what might be my qualifications from my (historic) attendances at local community education and training courses … well! Government to blame? Acquaintance(s)? Is this why my clinical medical record is denied? Or because I’m one of the research subjects whose genetic information was included in a top secret document that is being withheld from the British public – previously until 2025, now because we’re still alive and kicking it’s not being released until 2064 or something! Cheeky fuckers never even had my permission as a 13 to 17year old and never had my parents permission either!!!¬†(That other lady using my name didn’t exist when I first checked for potential ID theft, I don’t believe she’s using WordPress, but she is practising professionally in some kind of field – a criminal one! -previously there was just a potential fraudster posing as a genetic scientist in Cornwall but that could have been a coincidence or just a piss-take because I was in the process of writing an article on familial incidents of Myalgic Encephalomyelitis. I probably will find this won’t even post now because neither of main party of British government and possible US government / the World Health Organisation / the pharmaceutical industry would want an honest person trying to share any true factual information about their own patient expertise! it isn’t even actually what i would wish to blog about. But I do wonder why my stolen certificates have potentially been allowed to be used by someone else – and I do have other means of verifying that I attended those courses because I keep¬†everything – notes, assessmentt forms and even have the photos the tutors etc gave me of our class during attendance!¬†God! England is such a bogus shithole it’s unreal!!!